جامعة الكوت - University of kut - بحوث خالد عبدالكاظم علي حسين

السنة	عنوان البحث	نشر البحث
2019	Effect of Health Educational Program on Improving Knowledge and Practices of Caregivers of Children with Xeroderma Pigmentosum
Background. Xeroderma pigmentosum (XP) is a rare autosomal recessive hereditary disease characterized by hyperphotosensitivity. Aim. This study aims to evaluate the effect of a health educational program on improving knowledge and practices of caregivers of children with xeroderma pigmentosum. Subjects and Methods. A quasiexperimental design with pre/post intervention assessments is utilized in this study with a purposive sample of 50 caregivers from 21 families of 30 children with a diagnosis of XP from the Pediatric Dermatology and Oncology outpatient clinics in the Children’s Hospital, Ain Shams University in Cairo; the Dermatology outpatient clinic, Cairo University Hospital in Cairo; the Oncology Center, Mansoura University (OCMU) in Mansoura, and the Oncology Center, Tanta University in Tanta. Results. There were highly statistically significant differences between mean scores of pre/post test p< 0.001 in total mean scores of knowledge about XP that 38.13% of caregivers had poor scores, which improved to 71.98% good scores after implementation the program. Regarding to practices, 42.45% of caregivers had poor practices, which improved to 76.78% that indicated improvement after providing of the educational program. Conclusions and Recommendations. The study demonstrated that implementation of an educational program had a significant positive impact on caregivers’ knowledge and practice. The developed educational program should be implemented on a wider scale of nursing care and for longer time to assess long-term impact in further studies.